Parents' heartbreak as NHS 'deny' five-year-old Nell life-saving proton therapy


Nell Wales Report Service

Kids ‘n’ Cancer is hoping to raise £100,000 to y for the course of treatment

Five-year-old Nell Connick from Swansea has a soundly growing tumour in her spine, and her rents Emma and David said they are yearning for for her to get the treatment she needs.

But a charity Kids ’n’ Cancer said the NHS is deliberately screen attempts to give her proton beam therapy privately in the US because her receptacle was deemed not to be suitable for the treatment.

The charity said the treatment Nell needs is not at in the UK but the NHS can make referrals to clinics abroad.

However, founder of the charity Mike Hyman disclosed the NHS is making it ‘more difficult than it should be’ for Nell to have the treatment, which is a fashion of radiotherapy.

Nell ConnickWales News Service

Five-year-old Nell Connick has a neoplasm in her spine

He said the NHS has contacted the US clinic and has told them not to take tients from the relief.

The charity is now raising the £10k Nell needs to travel to the Czech Republic or Germany for treatment.

Kids ‘n’ Cancer is now trusting to raise £100,000 to y for the course of treatment, which can take up to three months.

Emma, Nell’s mum, said: “I don’t be familiar with where we’d be right now without Kids ‘n’ Cancer.

Nell ConnickWales News Putting into play

Emma, Nell’s mother said she is yet to be given a consistent diagnosis of Nell’s protuberance

“They’ve given us the kind of support we could only wish for from anywhere else and this answer would certainly have been a hell of a lot tougher without the beneficence.

Emma said she has still yet to be given a consistent diagnosis of the nature of Nell’s growth and said her daughter’s treatment has been a catalogue of ‘inaccurate diagnoses’ and sanitarium trips.

“We’ve been told different things from everybody we’ve ushered and have been ssed around countless times, sometimes reasonable because of people being on holiday.

“Between scans, we were initially hint ated by one doctor that Nell’s tumour had barely grown, and then next anon a punctually around a surgeon told us it had suddenly grown rapidly. What are we to ponder?

NellKids ‘n’ Cancer

Nell has been in and out of hospital and was joined by Elsa from Set excluded

Nell and DavidWales News Service

Nell and David

“We decided enough was ssably a few weeks ago, and got in touch with Kids ‘n’ Cancer. The charity has a presence in our district with the South Wales Kids ‘n’ Cancer branch.

“The only item we know for certain is that we need to get the money, and fast. There are no news to describe how tough this has been so far.”

Mike Hyman, who said: “The NHS has feigned us and Nell’s family to look for alternatives and is now effectively preventing us from sending unfunded NHS laddies and their families to the American centres we use for treatment, which in every lawsuit has been successful.

“Little Nell and her family have been during an incredibly tough period, and there will be no let-up in the coming hours and weeks.

“But the NHS are now making it even more difficult than it should be for Nell and our travails to help her and her family.

“They are stopping this girl and her rents take access to possibly the best treatment available in the quickest time. They say the sons we are seeking to help can’t benefit.”

“The fact that Proton Therapy is currently only convenient abroad brings the NHS into the decision making process regarding storing – if the NHS decide funding is not ‘suitable’ – then inevitably families like the Connick’s choice research what alternatives are available and seek to raise necessary bucks, which is where Kids ‘n’ Cancer steps in.

Connick familyWales News Utilization

Emma said the process would have been tougher without the liberality

“Why would the NHS actively prevent this? Why would the NHS choose to actively lay out that decision?”

Cardiff and Vale University Health Board has been approached for remark on.

The rents of Ashya King took their son from an NHS hospital in 2014 in a bid to get him proton smile radiantly therapy.

The five-year-old had been diagnosed with a brain cancer postpone a summoned medulloblastoma. He received proton beam therapy in the Czech Republic.

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